----- Original Message -----
From: Beverly J.Doucette
To:
Cc:
Sent: Monday, June 30, 2003 6:47 PM
Subject: Fw: Misleading issues on the IAS web site and at Bombobeach web sites
Hello David, and all,
You will find what appears to be some serious misrepresentations regarding adhesiolysis procedures in Frankfurt, Germany as posted on the IAS message board. These postings seem to be intentional misrepresentations by those who post and have been aware of what is being posted on the Bombobeach Adhesion message board regarding adhesion symptoms post adhesiolysis in Frankfurt with Dr. Kruschinski!
Lisa Graven recently posted her current post surgical symptoms, and we know of others who have shared similar symptoms post adhesiolysis in Frankfurt, but did not elect to share them publicly fearing Dr. Kruschinski would not treat them again if they needed his services!
I have always hated, yes, hated dishonesty in dealing with issues surrounding ARD, and one of the things I detest most is using the innocent victims who reach out in sheer desperation for help, only to be victimized again by those they thought they could trust!
In the case at hand, those who posted their "miracle" cures in Frankfurt on the IAS, and then posted the TRUTH of not only their current post Frankfurt symptoms, but what they intended to do about it, which is a follow-up operation in Frankfurt, and more then once! They lied about their REAL post surgical symptoms and outcomes by hiding the truth when posting for others to read on the IAS, and then posting totally opposite things on the Bombobeach site! And others knew it, yet contained to post on their IAS that "miracles " and 100% success's were coming out of Frankfurt!
For other post surgical patients from Frankfurt who are currently suffering, it is by their silence that misleads others to go to Germany for the miracles! This is just as incriminating as being a liar in my book! You post one week post op on how wonderful life is post Kruschinski, then not another word when the going gets tough...and watch as others head over there hoping for and expecting that same miracle! And when or if symptoms resurface again their lives, they start to second guess themselves again, and that cycle starts all over again for them as who can they talk to if they are the only one who that surgery didn't work on..can they tell the truth without angering Kruschinski when they might need him again!
And Kruschinski, offering free or reduced re-operations to those who will advocate for him.
This must be stopped, and it will be as I will do it if you, David, if someone else doesn't come out with this...no more victims, and certainly no more victims via the IAS, this is not our standard.
Helen, be wary for now, please do not make a hasty decision as to any surgeries, lets see what comes of all this, I think all of us got sucked into yet another terrible situation from reading far to many premature postings post surgically!
Later
Bev
==================================================
----- Original Message -----
From: Beverly J.Doucette
To:
Cc:
Sent: Monday, June 30, 2003 10:49 AM
Subject: Re: Adhesion returning post SECOND LOOKS in Australia & Frankfurt??
Dear David,
Jo Eslick says she has adhesion back! She has an adhesiolysis with Dr. Vancaillie in Sidney with the Confluent Spraygel!!?
http://pub49.ezboard.com/fbombobeachfrm1.showNextMessage?topicID=491.topic
Sally Grigg as well.
http://pub49.ezboard.com/fbombobeachfrm1.showNextMessage?topicID=474.topic
Lisa Gravens returned to Daniel for a THIRD look procedure, now she thinks her adhesion have reformed as well
And Dawn Rose thinks she has adhesions back???
It appears that these ladies have communicated thier concerns to Daniel..
A Kelly states she DOES have adhesion back…
And there are more from what Dawn Rose states in communications coming in to her from Daniels patients!!
Considering that we only hear from those who have had adhesiolysis in Germany when they return home soon after surgery, but not after that to offer any longer term results, it is puzzling to me as to what is going on. ( Karen Steward posts a lot, but she doesn't have adhesions and has not had an adhesiolysis!! There are no reports on the daughters current health post surgically.))
As I read the posts in Bombobeach, there was NOT much about sending patients to Kruschinski like on the IAS, but rather talk of more adhesiolysis surgery with Confluent, both in Frankfurt and Australia! ( Not even Karen Steward posts a lot about Frankfurt on the Bombo site??)
The IAS post is NOT seeing these posts about return trips to Frankfurt for adhesiolysis after Confluent use..???
This may not be valid, but why would anyone say they are scheduling for more surgery hoping Spraygel will work this time???
What could be going on here?
Any thought about this?? How conclusive is a second look? Now I am wondering about that as well as the high rate of success's Daniel is claiming. Has Daniel ever stated to you or Harry as to how he is tracking his success in adhesiolysis procedures with Confluent?
I will send this to him as well as he might be able to offer some insight into these things...
Bev
----- Original Message -----
From: Beverly J.Doucette
To: Dr.Kruschinski@t-online.de
Cc
Sent: Monday, June 30, 2003 5:42 PM
Subject: Re: MIsleading issues on the IAS web site and at Bombobeach web sites
Hello Daniel,
(I am sending this email to others, but I am not at liberty to share their respective email address's.)
I wanted to discuss my issues with you prior to posting anything in public regarding the disturbing and confusing posts, both in the IAS web site and at Bombobeach web sites, that I have come across regarding adhesions and Confluent.
This is the second email communication I have sent you today, but in that previous email I sent you the names of persons who had an adhesiolysis with you and are stating they are currently experiencing similar symptoms of adhesions as they had prior to your adhesiolysis. Though these ladies do not have a confirmation that adhesions have in fact reformed post your adhesiolysis, they perceive that they have adhesions again based on their symptoms.
In the posts on the IAS it is stated that ALL your adhesiolysis second look procedure produced an adhesion free peritoneal cavity with photos to prove that to be fact. No reason to question that either. You also stated to me that your success was in greatest part due to the Gasless procedure verses the Confluent Spraygel. Your Gasless adhesiolysis procedure is being lauded over and over again on the IAS, at times actually in a confronting manner by those who are staunch backers of it! This week, something Karen posted on the IAS web site that triggered me to go into Bombobeach web site, which I never do unless prompted to do that by some issue.
I was amazed to find that people who were posting in the IAS telling others about the "miracle" cures and adhesion free second look procedures in fact were NOT posting such message in Bombobeach, instead Sally Grigg is posting that she has adhesions again and that your procedures did not prove effective for her! Karen Steward, one of the staunchest fans of yours, was NOT repeating over and over again on the Bombobeach site for people to GO TO FRANKFURT, etc, etc..and it is obvious to me why she is not doing that in Bombobeach, Daniel! It is because she, and Sally and others are well aware that not all the cases coming out of Frankfurt are in fact success's! In Bombobeach they know about Sally, yet in the IAS no one is the wiser...but they will be. We have just learned that Lisa did in fact have adhesions in her "third" look procedure and may well in fact have them, again! Then I see that persons in Australia are being diagnosed with adhesions post surgically and with the use of Confluent Spraygel!
Tom Guest states that Spraygel is only as effective as the surgeon using it..and that is indicative of what we are seeing coming out of Australia too!
Daniel, I need to ask you, and want to give you the opportunity to respond:
If your success's are measured by the gasless procedure and not the Confluent Spraygel, and as of today we have five of your patients who are experiencing adhesion like symptoms, with some planning to return to Frankfurt for a surgery, is that saying the
1.) Gasless procedure with Confluent is not offering any better results then a surgery with gas and Confluent?
2.)Do you agree that the Confluent Spraygel is effective only when used in conjunction with meticulous hemostasis and sharp dissection, regardless of CO2 or not?
3.) How can your second look procedure state there are NO adhesions, and then somehow reform after that, such as in Sally Griggs case ( as it appears) And it did happen in Lisa's case?? I do not think the Australian cases had second look procedures.
4.) Where you aware that nothing was being said on the IAS web site about these current issues of not all of your cases were a success?
5.) Don't you think it is misleading not to share on the IAS what is being posted on Bomb site for those who think that there have been 100% success's in Frankfurt, when in fact that is not the case? I know it is not proven, but people have to be told everything in order to make an informed decision before electing to have a surgery!
People are being told that your adhesiolysis procedure is producing at 100%, and by Sally and others NOT posting their true post operative symptoms, it is misleading others, I do not like that at all.
6.) I realize that ARD symptoms can be and most times are decreased following adhesiolysis, if not all the symptoms, most of them, and pain being the dominant symptom,
maybe the results are being shared way to soon to be true.
7.) I have noticed that few of your patients continue to post for long periods ( weeks and months) post surgically, this could be indicative that they too are experiencing what those on Bombobeach are stating and what we are now hearing from those who's name I sent you in that prior email. I did not feel it was appropriate to mention them as I am copying this email to others as they post frequently on the success's of your adhesiolysis, and they also see what is being posted on Bombobeach..I know that they have known about these discrepancies, yet have chosen not to share them on the IAS but rather to continue to share how effective your adhesiolysis procedures are. ( With the exception of Lisa Gravens who just now shared the truth on the IAS, but well after many have already gone to Frankfurt based on her success story. I cannot send anymore victims of ARD to Lisa for counsel as she has not been up front and they are victims once again by her own silence, as with Karen knowing what was being discussed in Bombobeach, yet misrepresnenting the issues on the IAS, and very firmly too, and Sally Grigg, her posts regarding her post surgical symptoms are from each end of the spectrum, depending on where she is posting that is! The IAS, well, Sally hasn't said she has current problems, so those who read of "her miracles" at your hands are really being misled! Shameful!
I know of others who have not spoke up publically because they fear they will not be able to return to you for help. I am going to ask them to do that now, Daniel.
8.) Karen Stewart asked that patients who are post adhesiolysis, both with you and other surgeons, share their respective longer term results with the others on the IAS, in part I think she was looking for patients who have had your adhesiolysis to share, but to date, well, the long term folks have not faired so well, and her daughter is to recent to really know how effective her adhesiolysis will be, and others simply have disappeared.
I plan to bring this to the attention of the IAS posting board , but I wanted to give you the opportunity to know what I had found, maybe you can offer some explanation to the issues with post surgeries, and I do not think you were aware that two different scenarios of your adhesiolysis results was being stated on the two web sites. I do think by simply directing people to Bombobeach site will offer them the opportunity to read these things for themselves and THEN they can determine if they think Frankfurt is in their best interest for an adhesiolysis.
I think it would also be best to hear some of the longer term results from the PATIENTS themselves, Daniel.
I am of the impression that Jo Eslick was NOT aware of the differences in postings from one web site to the other as she would have not allowed such misrepresentations to continue as the only ones hurt by it are those who our respective web sites are meant to help..the victims of ARD worldwide!
Looking over the posts out of Bombobeach, I am not sure that even the combination of Confluent Spraygel, Gasless procedure and the skill of the surgeon can now offer what the victims of ARD will need to be well! Something is going wrong in Australia as well...it is discouraging to be sure!
Take care,
Beverly
==================================================================
Lisa Gravens had a THIRD look procedure, .and she too has Confluent? She thinks her adhesion have reformed as well
From: Lisa
Sat Jun 28 10:16:12 2003
http://www.adhesions.org/forums/ADHESIONS.0306/0343.html
==================================================================
Sally Grigg
From: Sally Grigg
Fri Jun 6 22:21:19 2003
"There is an answer to adhesions and its Dr. Kruschinski, a gas-less laproscopic surgery with spray gel. Good luck, Sally Grigg"
http://www.adhesions.org/forums/ADHESIONS.0306/0066.html
I'm okay/Hooray/Sally Grigg
From: Sally Grigg (
http://www.adhesions.org/forums/ADHESIONS.0303/0353.html
Sat Mar 15 17:55:59 2003
Dear sisters and friends, well, its been two weeks and the spray gel will have been absorbed and the adhesions were not there on the second look. I know I should wait to declare victory again over those nasty adhesions, but I feel like they are not there. So hooray, maybe the second time is the charm. I did have to take cortisone to help me with the spraygel, and I'd never taken it before. Not a very nice feeling, but overall I can't complain. I went from a slow agonizing death like existance for years, back through the Valley of the shadow of death and now feel alive and well and active and happy. I'm so thrilled that we finally have an answer in Dr. Daniel Kruschinski's skill, his gasless and spraygel techniques. I also want you to know he has never asked me to sing his praises. He wouldn't, he is too busy helping people. The only way I say something is if I mean it and no one can get me to say something if I don't feel like saying it. The only reason I keep mentioning Daniel Kruschinski's name is so that others can go through "my miracle" and be well again. I wish you could all be adhesion free. Someday, with any luck, we'll have a "cure" for most adhesion suferers. That doesn't mean it is a sure thing, but we have hope now, what a blessing. Love to all and I promise if you email me, I'll email you back. Love, Sally Grigg
Sally Grigg on Bombobeach
(6/18/03 10:50 am)
http://pub49.ezboard.com/fbombobeachfrm1.showNextMessage?topicID=474.topic
Dear Jo and Annie,
I have a theory about those of us who have explosions of adhesions. I don't think one surgery and one application of spray gel will work. I think a second surgery may be required, but then , ah then, the adhesions should be gone.
My first surgery in Germany when my intestines were on top of my stomach and greatly constricted took six hours because of the complexity and location of the adhesions. But the number of adhesions were not that great.
The second surgery after the appendiciti/peritonitis the adhesions were soft and came out easily but it still took six hours because there were dozens and dozens of adhesions, a veritable explosion.
So in my theory that’s why they came back. One surgery/application of spray gel just was not sufficient the second time. But I have great faith that the next one will get me 100% well.
I'm so much better than I used to be. I'm living instead of dying.
Love,
Sally Grigg California
================================================================
(see postings in part from Bombobeach. below )
Last August Jo Eslick posted as well that her adhesiolysis procedure in Australia was as effective,
==================================================================
Jo Eslick says she has adhesion back!
She has an adhesiolysis in Sidney with the Confluent Spraygel!! back in August 2002 ( see below)
Jolovesbombo
Owner & Founder
Posts: 672
(6/16/03 11:46 pm)
"Just a quick note to let you know that I am home safe from my day trip to Sydney for another round of appointments at the endo/Gyn clinic at the Royal Hospital for Women in Sydney.
Now... the bad news is it is likely that I have some adhesions back.... sticking down the top of my vagina (again ) and may I say BIG ouchies Yes, there is more surgery ahead of me, but at the moment, Jason is leaving it up to me.... I will see what happens, because it is Emma's last year of high school and her important exams are coming up, so I don't want to be in hospital until after her final exams, I know she would "stress" too much over me otherwise.....
Just a quick note to let you know that I am home safe from my day trip to Sydney for another round of appointments at the endo/Gyn clinic at the Royal Hospital for Women in Sydney." Jo Eslick
http://pub49.ezboard.com/fbombobeachfrm1.showNextMessage?topicID=491.topic
Surgery & SprayGel are available in Australia too
From: Jo Eslick ()
Fri Aug 9 20:17:02 2002
"I will not be leaving the IAS board or bombobeach.com now that I am pain free... I want to help as many of you achieve this wonderful feeling too... " Jo Eslick
http://www.adhesions.org/forums/ADHESIONS.0208/0232.html
=============================================================
http://pub49.ezboard.com/fbombobeachfrm1.showMessage?topicID=511.topic
Jolovesbombo
Owner & Founder
(6/27/03 9:14 am)
Hi ya beach buddies!
It was our sweet Annie who started our beach buddy greeting and thought it an appropriate to start this update on her progress.
I did get to speak with Annie for a short time yesterday afternoon when I called her at home on the farm outside Perth. As most of you know Annie had a lengthy laparotomy, division of adhesions and application of seven kits of SprayGel just a little over a month ago now.
I did get to speak with Annie for a short time yesterday afternoon when I called her at home on the farm outside Perth. As most of you know Annie had a lengthy laparotomy, division of adhesions and application of seven kits of SprayGel just a little over a month ago now.
Annie enjoyed less than two weeks of feeling great and eating things she hadn't dared for years.... when tragedy struck in the form of a very nasty bowel blockage more or less in the middle of what is left of her bowel. (Annie has an extensive history of surgery including several bowel retractions).
She was admitted to hospital for observation and pain relief while the doctors and Annie waited to see of the blockage would resolve itself... it didn't and eventually Annie required an NG tube and drip to keep her hydrated through this latest crisis.
The blockage wasn't completely resolved but Annie convinced her doctor (Jeff has been her doctors for a good many years and they have an excellent doctor/patient relationship) that she was ready for home because she felt she would be more comfortable and it would also make her pain management much easier.
It has been a difficult time for Annie with scans revealing that adhesions are in fact the causeof her blockage problems and that at some stage further surgery is going to be required.
http://pub49.ezboard.com/fbombobeachfrm1.showMessage?topicID=463.topic
Annie has asked me to post an update for her about her recent surgery and application of SprayGel... Last weekend Annie was admitted to a local hospital in Perth with an acute Bowel Obstruction, the CT scan showed that the obstruction was caused by adhesions.
=============================================================
Beverly J. Doucette
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