ARD, CAPPS, Adhesions and Adhesion Related Disorder , Internal Scar Tissue, Hope for those who suffer from Adhesions

Friday, February 24, 2006

Bev’s reply to the accusations of “Anonymous” regarding my advocacy for persons afflicted with ARD.

I ask all who read the following to know that I had not posted anything to precipitate this post, nothing, and I have not posted anything anywhere regarding “Endogyn” in Germany, for many months, if not over a year, here in ARDchat or anywhere else for that matter!

From: Anonymous
To: (Private) But NOT addressed to Bev Doucette, rather it was forwarded to me, which is fine.
Sent: Tuesday, February 21, 2006 11:48 AM
Subject: [Adhesion Related Disorder International Human Rights Team IHRT] 2/21/2006 11:42:42 AM

Beverly D. seems to deem herself a doctor. She does a disservice to people suffering by sticking her nose where it doesn't belong. It appears that the German doctor is getting ahead of Reich and this doesn't settle well with Beverly. Or perhaps money is involved? Money that SHE is missing out on?
--
Posted by Anonymous to Adhesion Related Disorder International Human Rights Team IHRT at 2/21/2006 11:42:42 AM

Bev’s reply to the accusations of “Anonymous” regarding my advocacy for persons afflicted with ARD.

 I have never, nor will I ever claim to be a Dr., however, I do posses a vast amount of knowledge regarding ARD medical issues, and as I continue on my quest to find answers for, protect and educate persons afflicted with ARD, I am certain that I will continue to gain knowledge about ARD that does far outweigh what MOST persons within the medical community posses. As I have always done, I offer anyone to address any issue regarding ARD with me and I will prove my words are truth!
 I continue to respond to the needs of persons afflicted with ARD to the best of my ability, and will continue to do that for as long as I elect. I DO NOT “harvest” patients for any surgeon NOR do I make any attempts at pushing an ARD sufferer to a surgeon, if they ask me my opinion on a surgery or surgeon I think offers a high quality adhesiolysis, then I most certainly do share about Dr. Harry Reich! This is no different then any other ARD patients who wants to share about the adhesiolysis they had with a surgeon, if it was successful. This IS important to do, as “adhesion specialists & surgeons” have crawled out of the woodwork now and are a dime a dozen..most are NOT qualified to offer anything in an adhesiolysis other then to add more injury to the patient!
 I do NOT care who travels to “Endogyn” in Frankfurt, Germany, nor do I care about the outcome of their respective surgeries there. MY concerns were and still are that prospective patients to ANY surgeon know everything they can about the procedure, the surgeon and the outcomes of prior patients who had adhesiolysis procedures with that respective surgeon, no “bogus” stats or claims, no pushing with false promises, and most of all, that prior patients of the surgeon do not “embellish” the outcomes of their surgery in an attempt to lure patients to a surgeon. These have always been my concerns since similar things arose out of Frankfurt, and, unfortunately, I have not seen or heard anything to date to change my opinion that this has changed in the world of ARD!
 I have never, nor will I ever accept any money, gifts or any other type of material gratuities from Dr. Reich or any other person for any of my ARD advocacy involvements. In-fact, I give more money and gifts to assist patients to get to a surgery, then not! (And not all these patients go to Dr. Reich either!:-)
 Attacks against me, like this one, show that there exist people who will do anything to try discredit others from standing by their own convictions and experiences, as they themselves are doing. I am yet to understand this mentality? This is the reason why I always say that the ARD patient had better do his or her own homework rather then to listen to another’s opinion!!! “The fool is he who follows another blindly!” (And just might suffer the consequences of that for the rest of THEIR life, not the one they followed!)

Whatever it is that, “Anonymous,” has taken issue with regarding her comments about me, I am most willing to answer her questions or concerns right here in a public blog. (Or anyone else for that matter)
I am sure that some of that subject content will offer some education regarding ARD that might be beneficial to all who are afflicted with it. I also offer this as a “therapeutic” measure for this person to put some of her animosities to rest and hopefully get on with life with a more positive focus.
Now that the door of “opinions” has been open to me, I will take this opportunity to share come recent concerns regarding Endogyn and the surgeries being done there.
I recently received an email from women who had contemplated going there for an adhesiolysis; however, she brought some very disturbing information to me and asked for my opinion on it.
I have responded to her, and to the postings and pictures that are in the “Endogyn” web site, message board more specifically.

I have asked Dawn to place my reply to this lady on her blog as I prefer to have my opinions and more so, my concerns valuable to all. The ARD patient has given permission for me to answer her concerns in a public forum.

Here are some of the concerns she brought to my attention:
1.) How would an ARD patient going to Endogn know if a “4th” surgery would be necessary if the “hook” causes adhesions in the 2nd, and now a 3rd look, and
2.) Do I think that the “hook” undermines the “gasless” part of the adhesiolysis from being as successful and necessary as the surgeon there states it is?
3.) How can the adhesiolysis with the “hook” be better for an ARD patient if it causes adhesions?
4.) What makes this surgery in Germany better then any adhesiolysis here if the “Spraygel” is as ineffective as this surgeon states it is when used with gas, yet there were a lot of adhesions in the second and third looks from his surgery
5.) What would the reason be for an ARD patient to go there (Endogyn) if they have to go back that far again and again when your being told that a gasless surgery with “Spraygel” isn’t as successful as once thought?
6.) It is so confusing to see these pictures and read that the gasless procedure is the best, yet I see all those adhesions in his pictures and he says they are from 2nd, & 3rd looks from his procedure, what is the truth? Of course, pictures are truth, but why would he keep using that “hook” when he knows it causes adhesions?
7.) Why isn’t the “Spraygel” working in his gasless surgery?

I have forwarded to ARDchat my response to these questions and more.
I do have concerns here as I have asked more then once why patients were returning and when some of them shared that they had pain and massive bruising in the area where the “hook” was used, the surgeon always downplayed that as being a problem, let alone an adhesion!
I have also stated a number of time that there is a good reason other surgeons are not using this “gasless” approach to surgery, and all I can say about that is, “Thank-God!”

On a side mote based on a post I read recently regarding “reconstructive” surgery for abdominal laporotomy scars….99.9% of these surgeries will NOT benefit the patient, but make them worse for that surgery! You will definitely NOT secure a surgery in Europe that will offer anything better then you can secure here, and that is not saying much for these types of surgeries generally DO NOT work!

Anyway, please know that I have taken liberty to express my thoughts on the “3rd” look procedures, on the adhesiolysis offered in Frankfurt, Germany, and how it compares to “any” adhesiolysis one might secure here in the USA!

I will add this:
In my opinion, and based on experience and “adhesiolysis” results of other ARD patients, the best places to secure a high quality adhesiolysis right now are as follows: Ask me why and I will tell you! The truth is that only a handful of doctors worldwide are capable of doing an adhesiolysis surgery with a good chance of not making things worse.

Avellino,Italy > Dr. Malzoni Medical Clinic
Fax: ++39825683555 ++39825686662 E-mail:segreteria@malzoni.org or Mario.Malzoni@tin.it
Antwerpt, Belgium > Dr. Bruno.Vanherendael
tel : 00 32 3 2177411 fax: 00 32 3 2133730
Grand Caymans > Dr. Harry Reich
Toll Free: 1-877-527-7874 Tel: 570-674-2256 Fax: 570-674-2263 E-mail:reichh_paoffice@msn.com
Klinikum Duisburg> PD Dr. Matthias Korell
Tel: 0049 203 733 2200 Fax: 0049 203 733 2202 E-mail:m.korell@t-online.de


I would like to thank, “Anonymous,” for her post, as had she not done that, I would probably not have responded to the other, innocent and desperate email to me, in a public way.

Watch for my response to the “3rd” look procedures and “Gasless” surgery! Remember, I did see this procedure up close and personal and never agreed with it’s use from the first time I laid eyes on it, and I never saw where it offered any better plane or view the when gas was used to insufflate the abdomen!

Beverly J. Doucette
www.adhesionrelateddisorder.com

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