IHRT is a human rights team of persons from around the world who suffer with ARD. We share a common goal of protecting ourselves and others from practices not wise for persons afflicted with ARD. We address issues surrounding ARD in a public format so that those with ARD are informed in every aspect of an issue so that they can make an informed decisions about health care.
ARD, CAPPS, Adhesions and Adhesion Related Disorder , Internal Scar Tissue, Hope for those who suffer from Adhesions
Friday, February 24, 2006
3rd 4th look and hanging off the Hook Picture from Das Hook aka abdolift
A Real Good Look at what Happens on the Hook
Follow links to gasp in horror. Dr. Kruschinski, in his own words.....
God help us all...
Hello Mary,
Your email to me regarding the "adhesion pictures in Endogyn" peeked my interest and to answer your question, yes, it does concern me now that you brought it to my attention. I have elected to answer your questions in a public manner so that others who might also have seen these pictures and had concerns will also hear my take on them.
Might as well get this out front right away....
I understand that some will try to say that my comments is a "personal" attack on Daniel, a "war" to see who can advocate for their "favorite" surgeon, and on and on, but it is non of that silliness, it is simple rational answers to concerns raised about seeing so many adhesions in Daniels 3rd look procedures, and anyone, I repeat, ANYONE with half a brain and with ARD would have the same concerns as you do!
For those who did secure a high quality of life in an adhesiolysis in Endogyn, I am happy for you, but your outcomes had nothing to do with these pictures or this issue then, unless your improvements came over three or more return trips to Endogyn, then your opinion might carry weight. Don't bother to try to get into a fighting match with me over the 3rd look pictures, as I am not interested in your opinions of them...I am only interested in MY opinion of them, if you have an opinion, start your own web site or post on Endogyn where I don't have to read them and they will only be perceived as "advertising" anyway.
Most persons who have had an adhesiolysis with Daniel do not post their conditions anyway, so if they come out of the woodwork and share how they are currently doing, I think that would be super for any patients thinking of making the trip to Endogyn. And, yes, I will probably throw in a few "side comments" but as I said, this IS MY opinion and I was asked for it!
Keep this in mind: These are Daniels pictures and Daniels own words, so what is anyone going to tell someone with concerns about them, "shut-up, don't ask questions and just have your surgery with him?" ( These pictures are some of the most magnificent pictures of adhesion I have seen to date, so as far as being able to see what adhesions look like and how that attach and distort our organs, these pictures are an excellent tool for that education! However, it is not what you want to hear as a probable outcome of your adhesiolysis procedure in Endogyn, that's for sure!)
Another case of a 3rd look as an important tool in reducing ...
http://www.endogynserver.com/cgi-bin/210/cutecast.pl?session=QOcjlcasOyOqLuY79AhuY1mdDg&forum=2&thread=1694
You will not find me trying to get anyone from going to Endogyn for an adhesiolysis, in fact, I will tell them to go for it....
please read on!
I was sickened when I saw these pictures, and was reminded why I am always sickened when I see the "harvesting" of desperate, and vulnerable ARD patients to go to Endogyn for what is being touted as the best adhesiolysis anywhere, yet everything Endgyn is about shouts a very different claim if you know what your looking for. However, most who seek a surgery there are impressed by the time element this surgeon gives them via email, or by the words a VERY few who post over there, and surprisingly enough, people go for surgery there without ever realizing that most who have gone there before them, return time and again, in fact, some return in such secretive ways, that when I hear they have returned again, I wonder why the silence surrounding it. Curious. Some have gone back more times then I can remember, and of course, the surgeon does state that the more return surgeries, the more breaks you get in his rates!
You ask me if I think you should go to Endogyn for an adhesiolysis, well, Mary, that is a decision YOU have to make, but I will give you my 100% biased free opinion on it.
If your looking for an adhesiolysis that your paying for out of your pocket, and more then once it appears, and with "SprayGel", and a gasless procedure performed by a surgeon who claims to be an experienced laporoscopic surgeon, and you do not mind being hung on a hook, and probably will have to return time and again because of that hook,( so it appears based on the pictures and Daniels comments regarding it) and then repeat this routine who knows how many times, and if you do not return, and have complaints about your surgery and do not mind being called names or having your medical history put out on a public web site there, then go to Endogyn. What if the "hook" creates more adhesions in the #rd look procedure exit wound..a 4th, and 5th? Or does Daniel finally stop hanging his patients by the "hook" so that the potential for it creating adhesions is reduced..hello!?
THIS is what you will get.
Why is the 3rd-look laparoscopy extremely important ?
http://www.endogynserver.com/cgi-bin/210/cutecast.pl?session=QOcjlcasOyOqLuY79AhuY1mdDg&forum=2&thread=1392
I know that his immediate and numerous responses to potential patients is seen as something abnormal for a surgeon to do, and I too think it is, and I know the pictures of food on his web site indicates that one day his patients will be able to eat like that, and his history of wining and dining his patients is also enticing because desperately suffering people need attention, in fact, what could be more stroking then to be "befriended" in these ways by your potential surgeon, and it is in those things, and more, that in my opinion, patents are actually "baited" into securing a surgery in Endogyn. I say that freely, as there exists this pattern with patients heading off to Endogyn.
These behaviors do not lead to a healthy Dr./patient relationship as the patient is vulnerable to be hooked into thinking that unless they adapt to this kind of relationship, and no matter what they think or how they feel post operatively, they will be out future intervention there..yet, they do not seem to realize that the intervention at Endogyn is nothing different or even better then they would get from surgeons in their own areas, so it's history has shown. I am taken a back by Daniels own admission that his "hook" does in fact cause some terrible consequences, as for so long he has denied that when past patients complained of problems in that area. I am equally surprised at the amount of damage this "hook" creates, much more then I had suspected. I know understand why Daniel is the ONLY surgeon in the world to use it! (If anyone has not noticed, this "hook" has not caught on with other surgeons, isn't because it is so good!)
I DO know that ARD patients who return from adhesiolysis in Antwerp,Belgium, Duisburg,Germany, Grand Caymans, and Italy, and even patients to Endogyn who had Dr. Reich perform their adhesiolysis procedures there, have NOT had the same scenarios of so many repeat adhesiolysis procedures where adhesions of the magnitude are found such as seen in Daniels 3rd look procedures!
When you brought these pictures to my attention, I was appalled, shocked...as I cannot understand why a surgeon who makes all of the claims that Daniel makes about how and why his adhesiolysis is by far the best...has patients returning for 3rd look procedures that result in so many adhesions..and he uses "Spraygel" too, and a lot of it!! Daniel's pictures of his 3rd look findings do not look like the results one would expect to find from a surgeon of such superior quality for adhesiolysis procedures, self proclaimed! Of course, Daniel has an excuse for this too, his "hook" did it! (Like,"my dog ate my homework!)
Over the past years, Daniel has had every excuse a surgeon can come up with, other than his technique and procedure, for reformed adhesion found in such great amounts. We all know that adhesions reform, and that at times, it might take more then one procedure to offer the patient improvements in their symptoms from the adhesions, and we can accept that. But "something" is wrong, greatly wrong, when a surgeon makes claims that his adhesiolysis technique and procedure supercedes anyone else's in the world, and uses those claims to get patients to spend lots of money, travel long distances, and thinking they are really securing a chance to get better...when surgery at Endogyn offers them no better of an adhesiolysis then a neighborhood surgeon offers, and I mean here in the USA where SprayGel is not available! The facts of that statement lie in Daniels own pictures and words..finally!
I have elected to expose myself to what ever criticism comes my way after posting this, as I see the importance of making sure persons afflicted with ARD are as educated and informed about the procedure they are electing to have, and though any ARD web site can be filled with tons of ARD education and awareness of ARD, what is most important to be educated about IS the adhesiolysis procedure itself and the results of it!It is only the ARD sufferer who will become a victim once again if they are not wise in what they allow to happen to them.
I am of the opinion, that ANY ARD patient who elects to go to Endogyn for an adhesiolysis with Daniel, will in all probability, and a high probability at that, will NOT be well for the experience!
Putting all other issues of concerns I have had regarding Endogyn aside, I am 100% absolutely certain that anyone following through with an adhesiolysis there after reading this, is asking for more trouble but it is their choice, and one thing Daniel is correct about is that they knew what to expect before they arrive, and if things are not as they thought they would be after his surgery, well, it's not his fault! Come back for more surgery and he will fix it...again and again and again!
What would I advise an ARD patient seeking a high quality adhesiolysis procedure that really does offer them the best chances of securing improvements from the adhesions themselves...go to Italy, it is by far cheaper, and by far the best adhesiolysis in the world! Next is Grand Caymans with Dr. Reich, when he is available, and after that, go to Belgium or Dusiberg. These are all surgeons who are not only honest, but capable and who offer Spraygel, but it is the kind of Spraygel that seems to be different then what is used in Endogyn, as this Spraygel works! Oh, one more thing, no "hooks" are use at these centers of surgical excellence....Antwerp,Belgium, Duisburg,Germany, Grand Caymans, and Italy.
I will be 6 years for me to be free of adhesion pain, as will others I know of, and we did not have an adhesion barrier used, rather a high quality meticulous adhesiolysis with Dr. Reich in New York..with gas, no hook, and hours of surgery for each of us after having had multiple surgeries before going to Reich...and we all remain well from the adhesions. Other issues might persist, but that is the result of the prior surgeries, but no adhesion pain and in that we can now LIVE a near normal life.
The pictures in question.....
http://www.endogynserver.com/cgi-bin/210/cutecast.pl?session=QOcjlcasOyOqLuY79AhuY1mdDg&forum=2&thread=1392
Why is the 3rd-look laparoscopy extremely important ?
http://www.endogynserver.com/cgi-bin/210/cutecast.pl?session=QOcjlcasOyOqLuY79AhuY1mdDg&forum=2&thread=1694
Another case of a 3rd look as an important tool in reducing ...
Daniel makes excuses for HIS pictures, and ridicules others surgeons pictures (which I question as belonging to other surgeons, what did they do, give them to Daniel to rip apart, and they certainly don't make Daniels pictures look any better then they already look!)
Is this all in an attempt to take the focus off his pictures, which are the most horrific ones I have seen to date when it comes to follow-up procedures with an adhesion barrier..and with so much hype associated with the procedure, I think this is why I am shocked!
I remain shocked at Daniels lack of personal confidentiality of patients, as I am sure some of these patients from the US wouldn't care to have this surgery plastered all over the internet if they ever had to file for disability, or secure other insurances etc..something like this can be a real hindrance for them back here, not to mention the lack of respect for patients.
I wish I could ask these 15 or so recent patients of Endogyn how they are doing post operatively, but experience has shown me that many, if not most of these patients are not real forthcoming with truth as they have immediate bonds with Daniel that have them showing more concern for his reputation then for the truth that might offer the most beneficial information to prospective patients to Endogyn. Unfortunately for Daniels patients, they will forever be categorized with those patients of the past who did not tell the truth of the outcomes of their adhesiolysis with Daniel, but were rather taken in by all the attention showered on them and for need of future surgeries, which I think most did end up having, so their all allegiance to Daniel at that time WAS an honest call..they were desperate and they did end up going back!
If I could get one message to all of these ladies it would be this:
What would really be MOST beneficial to both yourselves and future patients to Endogyn and to Daniel, would be for all of you to post on the Endogyn message board each month sharing how you are doing, and post for up to 12 months. This would be the best and most beneficial thing you could offer to Daniel as well if you really do think you reaped a far better adhesiolysis then I am giving him credit for based on his pictures and comments here.
Posted Wednesday, December 7, 2005 @ 02:02 AM
For your information, we had many cases of adhesiolyis in the last weeks but I didn't post every ones surgery.
Jeanette from UK
Kara from US
Gina from UK
Kathleen from US
Jeannette from UK
Cynthia from Holland
Renata from UK and last Friday
Bonnie and LynDel from US
Regards
Daniel Kruschinski, MD)
Posted Sunday, January 15, 2006 @ 11:54 PM
Last Friday we had three new adhesiolysis cases:
Maureen,
Mary and
Helen from US
Regards
Daniel Kruschinski, MD
Cheryl Posted Thursday, February 16, 2006 @ 04:42 PM
Trisha Posted Thursday, January 12, 2006 @ 03:33 PM
mmf Posted Hi. We were just there in January, 2006.
Lyn Dell Posted Wednesday, January 25, 2006 @ 08:07 AM
I do have to wonder if the two people who went this month, "heartRuth & DUSTI KIRK," or anyone from the list above really looked these pictures over before they went to Endogyn, and if any of you did, what made you follow through with a surgery such as this?
I am praying that all of you have a successful adhesiolysis, ....but in the event that any of you from the USA DO have adhesion symptoms post operatively 6 months, please email me and I can direct you to a wonderful and competent, and ethical surgeon in Georgia who will perform a diagnostic laporoscopy, insurance paid, to see what, if any, adhesions might have reformed. He will video tape the procedure, and if, the adhesions are not dense, he might offer to lyse them.
IF your adhesions have reformed, or new one formed, and are as minimal as this one is, then why travel all the way to Endogyn, and risk this happening again? You KNOW it is caused by the "hook" and that your chances of it re-occurring from the surgery you just had to get rid of it, filmy or not, is great. Why would you keep returning?
!!! I do want to add here, that not ALL pain post adhesiolysis is due to adhesion reforming, though, all of us think that it is, and with just reason, however, a number of post adhesiolysis patient that have terrible pain and disabilities have been found to be adhesion free within the peritoneum, but live with horrific physical issues due to some of the invasive procedures they had well before the adhesiolysis that freed them from peritoneal adhesions.!!!!
This is another reason to seek a diagnostic procedure with a safe surgeon who will not start to snip adhesions if found..but do a simple look see and video tape it for use in future decision regarding your health.
If you need assistance post Endogyn, please post in ARDchat...and I will respond. If you do not feel that you can do this without fear of someone attacking you, then you know that have just been trapped in another part of what seems to exist with patients post Endogyn, and your all on your way to suffer for a long, long time, alone and afraid!
I offer this a it is useless to state my opinion of the adhesiolysis procedures in Endogyn, then state I am concerned, and then offer nothing to assist patients who went there, so, from start to finish, my opinion, my concerns, my hopes, and my assistance...
God Bless You All!
Beverly J. Doucette
Author
Doc_Kru
Posted Saturday, January 22, 2005 @ 05:01 AM
Behind our concept of offering the 3rd look laparoscopy for minimal cost is a true idealism, in the end to improve, if not to cure adhesion sufferers.
As I wrote here:http://www.endogynserver.com/cgi-bin/210/cutecast.pl?session=Wtn4YkmGODKiQsKXpEhetdplBH&forum=2&thread=275
In short: a surgeon sees an improvement of the adhesion score as a success, whereas the patient often sees an improvement of symptoms or a complete disappearance of symptoms as a success!
After surgery some adhesions may return, the surgeon might measure the reduction of adhesions as an improvement while the patient says s(h)e has pain and therefore concludes the adhesions are back!
In some cases there may be a huge improvement of adhesions (by 99%), but some small adhesions (see picture below) might have formed somewhere and cause extreme pain.
Small adhesions can even cause bowel obstructions (briden ileus)!
Here you see how important it is to have the back-door opportunity of a 3rd-look laparoscopy. An adhesion formed to the umbilical incision of the second-look laparoscopy, and there is no way to avoid or exclude this as it is the last port that is open after we finish surgery, and this is still a very small wounded area with a minimal blood area where adhesions can form.
After we take this adhesion down, the patient might become pain free.
Author
Doc_Kru
Posted Sunday, April 10, 2005 @ 01:59 AM
Behind our concept of offering the 3rd look laparoscopy for minimal cost is a true idealism, in the end to improve, if not to cure adhesion sufferers.
Se also what I wrote about the importance of a 3rd look laparoscopy in our concept above at the fixed topics.
In short: a surgeon sees an improvement of the adhesion score as a success, whereas the patient often sees an improvement of symptoms or a complete disappearance of symptoms as a success!
Even after the best surgery some adhesions may return, the surgeon might measure the reduction of adhesions as an improvement while the patient says s(h)e has still some pain or discomfort and therefore concludes the adhesions are back!
Here is another case of very filmy adhesion reformation (pic 1 - 4), whereas other areas of previous adhesiolysis are healed excellent and show no adhesions (pict 5 - 7)
This adhesions could be taken down very easily.
http://www.endogynserver.com/cgi-bin/210/cutecast.pl?session=Wtn4YkmGODKiQsKXpEhetdplBH&forum=2&thread=275&session=Lr3BdvrARtrY8OmqAjkAkY37PN
http://www.endogynserver.com/cgi-bin/210/cutecast.pl?session=Lr3BdvrARtrY8OmqAjkAkY37PN&forum=2&thread=1392
Hanging off the hook
gingirl
Advanced
Gender: Female
Location: Texas
Registered: Jul 2003
Status: Offline
Posts: 85
Posted Wednesday, July 30, 2003 @ 06:38 AM
Hi Neil,
I do not have a video of Melissa's surgery with Dr. Kruschinski. I did not request a video. I do
have photos that were provided after her surgery.......however, I do not have them scanned in,
and I am sure you have seen many similar photos on web pages...........I can get them scanned
and email them to you, if you desire to see them, please let me know......they show the adhesions on the bowel, etc. and then the spray gel area....the second look shows photos of a shiny, healthy looking bowel. Melissa had more surgery on her second look, so there is also a photo of that adhesion and a photo of the area after it was taken down.
The second look adhesion could have been from the "hook" perhaps????
BD
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